You can now subscribe to the blog & receive updates via email or RSS.
You will no longer have to try to remember to manually check the website for updates!
Due to family illness, Luke's appointment at John's Hopkins has been postponed. We will let you know when
it has been rescheduled.
February 13, 2008 Update
We are all getting excited about our upcoming softball tournament! The tournament is scheduled for May 3, 2008
at Renaissance Park in Charlotte, NC. The flyers are on the home page, so feel free to print them off & pass them
out! And remember, we are non-profit, so your personal and business donations may be tax deductible!
On another note, Luke has his 2nd appointment at Johns Hopkins on February 18th
& 19th. We will let you know how the appointment goes.
Thanks to everyone for your support! We hope you are having a happy 2008,
& we look forward to seeing you at the tournament!
November 8, 2007 Update
We have some great news to share with all of you! We are now non-profit (501 (c) 3).
That is such a great honor and priviledge, and we are so thrilled to see what the future will bring.
We also wanted to share our fundraising accomplishments. In our first year,
we have raised over $14,000.00!
Thank you to all of our supporters, sponsors & volunteers. We could
not have been successful without your help!
October 20, 2007 Update
What a whirlwind this fall has been! We completed our first annual softball tournament last weekend.
It was a long day and an even longer 8 months of planning, but it was all worth it! We welcomed 12 teams in all and
enjoyed a full day of competition and fun. We had some great responses from our silent auction and even raffled off
an autographed Carolina Panthers football!
We do not have any other events planned for the immediate future, but our plan
is that spring 2008 should bring another event your way!
Thanks, as always, for your wonderful support. Luke and the Foundation
appreciate all you have done and continue to do!
October 2, 2007 Update
We successfully completed our first fundraiser at
Blue Restaurant on September 23rd, thanks to all of you! We had a great turn-out and lots of fun at the event.
Blue was so gracious to us, and they did such a great job helping us set up for the silent auction.
Speaking of the silent auction, come to the softball tournament on October 13th to check out the items that were left over. You will have a great opportunity to
bid on some amazing items donated to us for the auction!
We are all very busy now preparing for the softball tournament. We
have had some last-minute teams sign up, so the tournament should be a great success as well! If you are interested
in playing or volunteering, check out our softball tournament page for more information. And don't forget to tell your friends to come enjoy the fun and competition!
I'm sure many of you are wondering, so here is your Luke update. He is
having a great month. He was so excited about attending the show at Blue and had a great time meeting all the people
there. He was even photographed walking the red carpet since he was the guest of honor! Now he is really excited
about the softball tournament and can't wait to see all of you there.
As always, check back often for updates. And let us know if you have
any suggestions for our website. Just send us an email!
September 6, 2007 Update
Luke received an appointment confirmation for his follow-up appointment
at Johns Hopkins.
February 18, 2008
Second Appointment at Johns Hopkins
August 29, 2007 Update
Luke had his appointments at Johns Hopkins on Monday & Tuesday. We are, in
a way, back to square 1 because the specialists at Johns Hopkins want to see Luke again in 6 months so they can monitor the
changes in his aorta as well as other physical changes to help determine the relationship between a connective
tissue disorder and the aneurysm. The doctors want to make a well-educated diagnosis before labeling Luke's condition.
We are happy with the doctors at Johns Hopkins, and we know that Luke is in the
best possible care right now. So, as it stands now, Luke is to continue living as he has been the past several months,
and they will evaluate his changes in 6 months.
August 26, 2007 Update
Luke is getting ready for his big appointments at
the Johns Hopkins Comprehensive Marfan Center that are scheduled for Monday & Tuesday. Children's Flight of Hope is flying Luke, Mark & Vikki up to Baltimore on Monday morning and will fly them home Tuesday evening after the
appointments. We want to send a very special THANK YOU to them for choosing us for a flight to these very important initial
appointments at Johns Hopkins!
Check back later this week for an update from the
doctors at Johns Hopkins!
August 27, 2007
Eye Clinic @ the Main Hospital
August 28, 2007
Echocardiogram and evaluation
@ the Marfan Center
August 12, 2007 Update
We have exciting fundraising news! Blue
Restaurant & Bar, in uptown Charlotte, has chosen The Luke Pier Foundation for its "A Fashion Event 4-a-cause" Benefit!
We are so thrilled that Blue has honored us in this way. You can check out more about the event by clicking here.
We also wanted to update you & let you know that we are still looking for
teams for our softball tournament! So, sign up today - it will be a great event!
And keep checking website because we have another exciting fundraiser in the
works...more details soon!
July 19, 2007 Update
The flyers are finalized, and the plans are underway
for the tournament in September. Please feel free to print them & pass them out. You can access the flyers
on our Fundraisers & Events page.
On another subject, Luke had an appointment yesterday with a local pediatric
cardiologist. This doctor will be Luke's back-up physician in case of emergency, but Johns Hopkins will still remain
the primary contact. The other children will have their echocardiograms done at this local cardiologist's office
in August. That way the echos will be completed before Luke's first appointment at Johns Hopkins.
As always,
thank you for your support, & don't forget about the Softball Tournament!
July 9, 2007 Update
We have a date set for our first major fundraiser - a Softball Tournament! With the help of some local event planners we are making great
strides in the planning and advertising stages of the tournament.
The fundraising goal has not been set, but so far we hope to have
approximately 20-30 teams participate in the tournament.
Check back soon because we will be posting the event flier once
the details are finalized!
June 26, 2007 Update
Luke has received confirmation of his first appointments at Johns
Hopkins.
August 27, 2007
Eye Clinic @ the Main Hospital
August 28, 2007
Echocardiogram and evaluation
@ the Marfan Center
We are excited about Luke's appointment and can't wait to
know more about his condition. In the meantime, we thank you for your support of our family as we get the Foundation
on its feet. We cannot wait to make a difference in raising awareness about the Marfan syndrome!
